Human Centric Digital Health.

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PATIENT EXPERIENCES

Why is the Hybrid Patient Experience and Real-World Data Platform unique?

Lumiio’s Hybrid Patient Experience and Real-World Data Platform is unique because it strategically integrates two traditionally siloed functions - patient engagement and research-grade data capture - into a single, interoperable digital platform.

This hybrid architecture addresses critical gaps faced by patient organizations, biopharma companies, and clinical researchers.

  • 1. Bridges Patient-Centered Care and Evidence Generation

    • Most platforms focus either on supporting patients (e.g., content,tools, communities) or on data collection for research.

    • Lumiio unifies these two domains—offering meaningful value to patients while capturing structured data that is compliant, analyzable, and fit for regulatory, clinical, and real-world use.

  • 2. Dual Layered Architecture: Experience + Evidence

    • Patient Experience Layer

      Tools like personalized education, clinician and trial finders, daily health diaries, and community polling empower patients and foster retention.

    • Data & Registry Layer

      Deploys validated surveys, PROMs, and disease tracking modules aligned with regulatory-grade methodologies (e.g., longitudinal, standardized, exportable).

    • This structure ensures that what is engaging for patients also generates high-quality real-world data for research, trials, and post-market surveillance.

  • 3. Accelerates Recruitment, Retention, and Insight

    • Engagement features improve patient onboarding, long-term participation, and real-time insight generation.

    • Researchers and sponsors benefit from richer, more complete datasets across the patient journey.

    • Biopharma can accelerate clinical trial readiness, health economics submissions, and market access with continuous, patient-centered data streams.

  • 4. Highly Configurable Across Diseases and Geographies

    • Disease-agnostic and modular—can be deployed in rare, chronic,and high-burden diseases.

    • Supports global reach through multilingual UI, customizable consent, and governance models, aligned with GDPR, HIPAA, and local privacy laws.

  • 5. Built for Collaboration: Patients, Researchers, Industry

    • The platform enables multi-stakeholder collaboration without compromising patient trust, data control, or scientific rigor.

    • Supports shared governance models and granular data permissioning, empowering patient groups to co-lead data initiatives while enabling partnerships with industry and academia.

See How it Works

OUR DESIGN

Designed for maximum impact.

For Patients & Families

  • Track Your Health Journey

    Log symptoms, treatments, and milestones with the Health Diary.

  • Find the Right Care

    Discover specialists with expertise in your disease, clinical trials, and local services tailored to your condition and location.

  • Get Informed

    Access personalized educational resources tailored to your condition and disease journey.

  • Feel Seen & Connected

    Share your experiences through polls, stories, and community feedback tools.

For Patient Organizations

  • Grow & Engage Your Community

    Launch targeted campaigns, share curated content, and collect feedback.

  • Capture Community Insights

    Understand emerging trends and needs across your population.

  • Strengthen Advocacy

    Use real-world evidence to support policy change, funding requests, or care access improvements.

For Research & Industry Partners

  • Accelerate Real-World Evidence Generation

    Collect longitudinal, patient-reported data in real time.

  • Enhance Trial Readiness

    Understand natural history, care pathways, and patient preferences.

  • Build Trust with Communities

    Partner with advocacy groups on shared priorities and long-term goals.

 
 
 
 
 

PLATFORM FEATURES

What's inside the platform?

  • Health Diary

    Patients log and visualize symptoms, treatments, and quality-of-life indicators over time.

  • Support, Care, and Clinical Trial Navigation Tools

    Dynamic and personalized tools to help patients connect with clinicians, clinical trials, and community-based services that matter to them.

  • Polling & Surveys

    Capture insights from patients in real time to inform programming and research.

  • Custom Education Content Library

    Curated resources and updates that reflect patient needs and interests.

  • Community Engagement Tools

    Badges, achievements, and storytelling modules to incentivize and boost participation.

  • Data Dashboard (Admin)

    Secure backend access for organizations to monitor engagement and data trends.

  • Patient, Clinician, and Admin Portals

    Views and features customized to your role and organization type.

  • Data Visualization

    Track progress and see results.
See How it Works

PLATFORM FEATURES

Flexible & Scalable

Start small or scale fast - our platform is designed to grow with your community's needs.
  •  Starter Package
  • FREE

  • Offer immediate value to your community at no cost.

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  •  Tiered Package
  • Contact for Pricing

  • Add modules and features like analytics dashboards, longitudinal studies, and integrated research tools.

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  •  Custom Programs
  • Contact for Pricing

  • Work with our team to co-design enhanced features and programs for registries, natural history studies, or clinical trial support.

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Every implementation is tailored to the needs of the community. We partner directly with patient organizations and research teams to ensure the platform reflects your voice, priorities, and vision for impact.

TAILORED TO YOU

We Co-Develop your platform With You.

READY TO LEARN MORE?

Let’s talk about how the Lumiio Patient Portal can support your mission.

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