About Us
Turning Patient Experience
Into the Engine of Scientific ProgressAt Lumiio, we believe the most powerful insights in healthcare come from patients and families themselves. Yet too often, their experiences remain invisible in research, policy, and care. We bridge that gap.
Our team delivers digital platforms and services that engage patients directly, capture regulatory-grade real-world data, and connect communities with researchers and innovators who can act on their insights. With decades of collective experience, we’ve built a trusted network of patient organizations, researchers, and pharmaceutical companies, all driving toward faster discoveries, stronger advocacy, and better access to life-changing therapies.
Our purpose is to empower health communities by making patient voices central to healthcare innovation — unlocking better outcomes and meaningful change for the people who need it most.
Our Story
A Strong Vision Combined With Innovative TechnologyLumiio’s story begins in the Korngut Registry Science Lab at the Hotchkiss Brain Institute, University of Calgary, where our founders work as members of the health community conducting world-leading research in registry sciences. Our work in the lab gives us unique insight into the power of leveraging real-world data, and a mature system where we can study, iterate, and test new ideas.
Our Approach
Where Research Innovation and Patient Experience ConvergeWe build data programs with strong governance and flexible, digital-first tools, while leaving the science in the hands of investigators and patient organizations.
This lets us honour the standards researchers and regulators expect, while capturing richer, more continuous data directly from patients in their real lives. The result is evidence that is both scientifically robust and truly reflective of the communities it’s meant to serve.
Patient-Centric by Design
We co-create tools with patients and advocacy groups to ensure lived experience drives data collection, engagement, and decision-making.
Trusted by Researchers
Our infrastructure enables secure, standardized, and scalable real-world data capture across conditions, geographies, and study types.
Built for Collaboration
We bridge silos between patient organizations, biopharma, and research networks to create shared value and accelerate progress.
Our Team
Powered by PeopleThe Lumiio Team includes experts who specialize in Healthcare Research, Security & Privacy, and Technology Commercialization. Collectively, we have decades of experience working with individuals and families trying to find treatment and have built a network of researchers, patient organizations, and pharmaceutical companies to drive meaningful outcomes.
Our board have worked across relevant industries to help us succeed. They guide us as we constantly evolve to serve emerging needs in health communities
We are a team of innovators that are eager to light the way towards success. We are partners in your journey to make a meaningful impact in your community.
Our Impact
Driving Change Through Scale and Innovation– Programs spanning 18+ countries across 14 rare and chronic conditions
– Partnerships with 25+ leading pharmaceutical companies, advocacy groups, and clinical research networks
– Powerful data outputs enabling 50+ scientific publications, presentations, and releases
– 10,000+ patients on the Lumiio platform powering both research and care
– Highly engaged communities with more than 30% monthly active users
Let’s work
together
Contact us to learn how Lumiio can help you.