BetterLife FSHD Has Launched In Canada – Powered by Lumiio

[May, 2026]

BetterLife FSHD Canada, a new digital health platform developed in partnership with CNDR and the FSHD Canada Foundation, has officially launched to support individuals living with facioscapulohumeral muscular dystrophy (FSHD) across Canada. Lumiio provides the underlying technology infrastructure for the platform.

BetterLife FSHD Canada allows users to track symptoms, better understand their health, and access personalized resources, while contributing directly to research through secure data sharing with approved investigators. By integrating patient-reported data with CNDR infrastructure, the platform aims to accelerate real-world evidence generation, support clinical trial matching, and advance the development of future therapies for the FSHD community.

Learn more and join at ca.BetterLifeFSHD.org. Additional details are available in the official launch announcement from the FSHD Canada Foundation.