New Patient Registry Launched for People Living with Vestibular, Auditory, and Migraine Conditions in the USA

Lumiio is proud to announce it has partnered with the Association of Migraine Disorders to launch a new patient registry called HEADS (Headache, Ear, Auditory, Dizzyness, Sinus) for individuals living with atypical migraine symptoms and disorders. The main objective of the registry is to build a foundation of knowledge to support research into improving patient care. Data will be broadly collected on every aspect of the patient’s experience, from symptom onset through the diagnostic journey to treatment outcomes, to document the natural history of migraine symptoms.  

Migraines often present with varying symptoms, leading to slow diagnosis timelines for the estimated 40 million people living with the condition in the United States. The registry has the potential to help experts expand diagnostic criteria for migraine disorders, decrease the time it takes to get a diagnosis, assess the effectiveness of current treatments, and improve future standard of care. 

“​​This registry will create an important opportunity to understand the patient experience across diverse regions of the country, and how we can improve diagnosis and patient care for people with or without migraine that have sinus, auditory and dizziness symptoms,” said Alicia Torborg, Executive Director of the Association of Migraine Disorders. “We’re excited to be partnering with Lumiio on the development of this significant leap forward for migraine research.” 

“This registry is an important expansion in the Lumiio projects portfolio into a disease that affects millions of people globally,” said Blaine Penny, CEO of Lumiio. “We are excited to work with AMD to advance the future of care for atypical migraine patients.” 

To learn more about the registry, visit  

Lumiio is a global digital health company specializing in real-world data collection services to drive health outcomes for rare disease communities. Lumiio connects stakeholders in health communities to work towards the common goal of improving solutions for diagnostics, treatment, and care. 

Learn more: 

The Association of Migraine Disorders (AMD) strives to expand the understanding of migraine by supporting research, education and awareness. 

Learn more: 

Contact: Liam Laidlaw, Projects